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Princeton, NJ (PRWEB) November 15, 2012
Camille Schrier 13 of Newtown, Pennsylvania and Alexandra Coleman 16 of Skillman, New Jersey share more than a passion for pageantry. Both Hun School students will compete at the National American Miss (NAM) Pageant in Anaheim, California November 17th 23rd. Perhaps more of a coincidence, however, is that both students also utilize pageantry as a platform to educate others on Ehlers-Danlos Syndrome (EDS).
Camille is the reigning Pennsylvania State Queen and will contend for the title of National American Miss Teen. Alexandra won the Actress and Photogenic competitions at the New Jersey State Finals and was second runner-up in the Spokesmodel competition. She will contend for the title of National All-American Miss Junior Teen.
The diagnosis the girls share is EDS, a rare connective tissue disorder that affects skin, muscle, and ligament function. Both Camille and Alexandra have employed their success in pageants to educate others about the disorder and the challenges it causes to those who suffer from it.
EDS affects so much of how you live, said Alexandra. Yet, so few people know about the condition. Even doctors sometimes struggle to diagnosis EDS, because it is discussed so little. But, EDS affects nearly 1 in every 5,000 10,000 individuals. Its out there, and I want to make sure others know about it.
By competing in these pageants, said Camille, I have a platform and a reason to discuss things like EDS. The pageants provide great exposure.
In February of 2012, Camille received an email from a mother in North Carolina who had done an online search for information about EDS. The mothers search brought her to a website Camille created, because of her participation in pageants. On one of the pages Camille had written information about EDS.
Through their correspondence, Camille was able to connect the mother with various resources for her daughter. She also wrote a personal message to the young girl about her own experiences with EDS. It was so nice to have a personal connection to someone, who was going through the same uncertainties that I went through and to offer some comfort, said Camille.
Similarly, Alexandras efforts to educate and help others include creating a Youtube video about EDS, introducing The Hun Middle School to the disorder, speaking to her congregation at church, connecting with individuals with EDS on Facebook, and authoring an article for Looose Ends, the online publication from the Ehlers-Danlos National Foundation.
The Hun School of Princeton is a co-educational, independent college preparatory school in which student-centered learning is encouraged within the context of traditional curriculum, preparing its students for the global community in which they will live and work. Individual attention and strong student-faculty relationships are the hallmarks of the School. The Hun School is comprised of 620 students in its Middle School, Upper School, and Postgraduate Program. The boarding community is home to 152 students from twenty-one countries and nine states.
Read the full story at http://www.prweb.com/releases/2012/11/prweb10135941.htm.
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